The That 70’s Show alum said that he was diagnosed with vasculitis, an autoimmune disease that causes the body’s immune system to attack its own blood vessels, leading them to swell and narrow. According to the John Hopkin’s Vasculitis Center, the symptoms of vasculitis vary greatly, depending on which blood vessels have been impacted and the inflammatory process involved. Some of the common symptoms of vasculitis include headaches, joint pain, fever, rashes, fatigue, weight loss, rapid pulse, cough, and frequent infections. However, the disease can also cause even more severe symptoms, like kidney and lung problems, stroke, aneurysms, gangrene, deafness, and blindness.
Kutcher said in a 2022 interview that vasculitis affected his vision, hearing, and sense of balance, showing that he had a more severe form of the disease. He commented, “You don’t really appreciate it until it’s gone, until you go, ‘I don’t know if I’m ever gonna be able to see again, I don’t know if I’m gonna be able to hear again, I don’t know if I’m going to be able to walk again.’”
According to Kutcher, it took him over a year to recover from his vasculitis flare-up. The actor acknowledged that while his vasculitis diagnosis put him on a “terrifying journey” he knows that he’s “lucky to be alive”.
Unfortunately, there is no known cure for vasculitis, and the exact cause of what leads the immune system to attack one’s blood vessels is unclear. However, treatments are available to help ease the symptoms, including steroids like Prednisone, chemotherapy drugs like Methotrexate, and immunosuppressants like Cytoxan. It’s unclear what exact treatment Kutcher received after his vasculitis diagnosis.
Emma Zaks was 33 years old and living in New York City. As a fitness instructor at SoulCycle, she taught up to 18 spin classes per week, and was in terrific shape. That’s why Zaks was taken by surprise when, in the middle of teaching a spin class, she had to leave to throw up. Unable to continue the class with the debilitating stomach pains and nausea she was experiencing, she took an ambulance from her work to the ER.
After a few tests, including a colonoscopy, an endoscopy, and CT scans, Zaks was told that she likely had an infection affecting her stomach or intestines, and was given antibiotics and discharged after a six-day stay in hospital. The antibiotics didn’t work, however, and she woke up to a terrifying sight in the mirror: her right eye was pointing sideways. She was also seeing double.
Zaks later learned that she had had a stroke. Doctors prescribed her steroids, and covered her right eye with an eye patch to help her see straight. She was discharged from hospital, but Zaks’ troubling symptoms continued. “I found myself back at home, sicker than I’d ever been, and without a single real explanation. For two weeks, I lived and worked with continuing pain,” she explained.
She returned to the ER a third time, and an X-ray revealed that she had a stricture – her small intestines were abnormally narrow and had twisted around themselves, preventing anything from passing through. She received laparoscopic surgery to correct the stricture, and a biopsy to explore her condition further.
While awaiting her biopsy results, Zaks had an MRI done, which revealed a small lesion in her brain that controls eye movement and direction. Both her MRI and biopsy results lead doctors to diagnose Zaks with an autoimmune disease known as Wegener’s Vasculitis, or Granulomatosis with polyangiitis. The autoimmune condition had caused her stroke and her initial gastrointestinal issues.
“In a matter of months I’d become a shell of myself both externally and internally,” Zaks said. Her new treatment regimen included intense steroids and Rituxan infusions. She dropped to 95 pounds, was extremely weak, and always off balance due to her compromised vision.
Doctors offered few treatment options for her wayward right eye – which at this point, had been pointed sideways for a year. One medical provider even suggested Botox as a way to paralyze her eye muscles. Thankfully, she eventually found a physician that performed strabismus surgery, sewing the eye muscle to the wall of her eye, thereby fixing her vision.
Zaks was able to return to her job as a SoulCycle fitness instructor, and is grateful for her newfound health. “Since the surgery, I have to remind myself not to take for granted the everyday activities that used to drive me to tears in frustration,” she reflected.
Something else that has caused Zaks to reflect is the medical gaslighting she went through as part of her journey to diagnosis. “Knowing what I know now, I wish I had pushed harder for more answers, but who was I to question these doctors?” she lamented. “I hate confrontation and wanted to be a ‘good patient’ who was liked. So I took the prescriptions and advice to rest and went home, hoping for the best. Needless to say, things didn’t get better.”
Zaks believes it’s important to advocate for yourself as a patient, and trust your gut instinct. “If I had just listened to the initial diagnosis and prognosis, I would still be wearing an eye patch,” she declared.
To learn more about Zaks and her battle with Granulomatosis with polyangiitis, listen to her interview on the podcast Pregnantish.