Is there a link between diet and autoimmune disease?

About 8 years ago, I saw a powerful TedTalk by Dr. Terry Wahls, called Minding Your Mitochondria.

Dr. Wahls is a physician who was diagnosed with Multiple Sclerosis, a degenerative autoimmune disease affecting the body’s nervous system. After undergoing traditional therapies for the condition, including chemotherapy and usage of a tilt-recline wheelchair, Dr. Wahls studied biochemistry and learned about the nutrients that played a role in maintaining brain health.

After noticing a slow down in the progression of her disease after taking nutritional supplements, she decided to focus her diet on consuming foods that contained these brain-protecting nutrients. Only a year after beginning her new diet, Dr. Wahls was not only out of her wheelchair, but she had just finished her first 18-mile bike tour! She went on to develop a dietary regimen for those with autoimmune conditions, called the Wahls Protocol.

So, this raises the question, does diet play a role in the development of (and fight against) autoimmune disease?

There is evidence to suggest that there is a link between autoimmunity and one’s diet. For example, I recently wrote about a study published by NYU’s School of Medicine, in which researchers found that the autoimmune disease lupus is strongly linked to imbalances in the gut’s microbiome.

Furthermore, the Multiple Sclerosis (MS) Society of Canada also released a report detailing Vitamin D recommendations for MS patients, as a result of studies linking Vitamin D deficiency to the disease. Vitamin D is produced by our skin through sun exposure, but also comes from food sources such as fish, dairy and eggs.

Tara Grant, who has a condition called Hidradenitis Suppurativa (HS), an autoimmune condition of the skin, believes that there is a direct link between autoimmunity and diet, as a result of a concept called leaky gut syndrome.

Leaky gut syndrome, also known as intestinal permeability, occurs when the tight junctions between cells in the body’s digestive tract begin to loosen. This enables substances like bacteria, toxins and undigested food particles to enter your bloodstream. Consequently, your immune system reacts to attack these foreign substances, which leads to the development of inflammation and autoimmune disease.

After implementing a restrictive, dairy-free, gluten-free paleo diet, Tara has found that her HS symptoms have completely gone into remission. She now promotes the paleo lifestle on her blog, PrimalGirl, and even released a book, The Hidden Plague, which talks about her struggle treating HS through traditional means, and her journey to healing.

Now I’d like to hear from you Autoimmune Warriors- has changing your diet impacted your chronic health condition in any way? What changes have you implemented that have worked?

Learn More

To read more about the Wahls Protocol, check out Dr. Wahls’ website, and click here to get her book on Amazon.

To read more about Tara Grant’s journey to being HS-free, click here to get her book on Amazon, and check out her amazing gluten-free dough recipe, here.

10 Facts About Systemic Lupus Erythematosus (SLE)

According to the Lupus Foundation of America, lupus is a chronic autoimmune disease that can damage the body’s vital organs, skin and joints. Read on to find out 10 facts about this chronic autoimmune condition.

1. It is more common than you think

Lupus affects 5 million people worldwide, and 16,000 new cases are reported every year, reports the Lupus Foundation of America. In the United States alone, lupus is estimated to affect up to 1.5 million people. The exact prevalence of lupus among the general population is hard to determine, however, since the symptoms often mimic those of other disorders. For reasons unknown, lupus has become 10 times more common in industrialized Western countries over the last 50 years.

2. It mostly affects women

According to the U.S. National Library of Medicine, Females develop lupus nine times more often than their male counterparts. It is more common in younger women, peaking during the childbearing years; however, 20 percent of lupus cases occur in people over age 50. Because lupus largely impacts women, sex hormones are thought to play a role in the onset of this complex disease.

3. Your ethnicity may play a role

In the United States, lupus is more common in people of color, including those of African, Asian, Hispanic/Latino, Native American or Pacific Islander decent. In these populations, lupus is known to develop at a younger age and tends to be more severe as well.

4. Skin problems are a telltale sign

One of the characteristic signs of lupus is a red rash across the cheeks and nose bridge, which worsens when exposed to sunlight, called a ‘butterfly rash’ due to its shape. Other skin problems include calcium deposits under the skin, damaged blood vessels in the skin, and tiny red spots called petechiae, which occurs as a result of bleeding under the skin. Ulcers may also occur in the mucosal lining of the skin. To read more about how lupus affects the skin, click here.

5. Heart problems are also common

Pericarditis, an inflammation of the sac-like membrane around the heart, and abnormalities of the heart valves, which control blood flow, can occur in patients with lupus. Heart disease caused by fatty buildup in the blood vessels, called atherosclerosis, is more prevalent in those with lupus than the general population. To read more about how lupus affects the heart, click here.

6. Lupus affects the nervous system too

A lesser known fact about lupus is its impact on the body’s central nervous system. For example, lupus causes damaging inflammation, which may result in peripheral neuropathy, which involves abnormal sensations and weakness in the limbs. Lupus can also cause cognitive impairment, also called ‘brain fog’, which makes it difficult to process, learn and remember information. Seizures and stroke may also occur.

7. It may be genetic

Lupus tends to run in families. However, the exact inheritance pattern is unknown. Certain gene variations can increase or decrease the risk of developing the disease; however, not everyone with the disease will get lupus. Relatives of those with lupus have a 5-13% chance of developing the disease. Sometimes, someone with a family member with lupus may inherit a different, but related, autoimmune disease, such as Sjögren’s Syndrome or Rheumatoid Arthritis (RA).

8. Lupus can impact one’s quality of life

According to research conducted by the Lupus Foundation of America, 65% of lupus patients state that chronic pain is the most difficult part of having the disease. Furthermore, 76% of patients say that the disease has caused them to develop fatigue so severe that they have had to cut back on social activities. A further 89% of patients report that they can no longer work full-time as a result of their disease. Lupus can also cause mental health problems such as anxiety and depression.

9. The prognosis of the disease varies

Patients with lupus often have episodes during which the condition worsens (called ‘exacerbations’ or ‘flares’), followed by periods of remission. However, since lupus does not currently have a cure, it is a life-long condition. Lupus is known to get worse over time, and damage to the body’s vital organs can be life-threatening. This is why it is important to work with a team of medical professionals that understand the disease.

10. There is hope

If you or a loved one has been newly diagnosed with lupus, check out the Lupus Foundation of America’s newly diagnosed webpage. It is full of resources about the disease, including treatment options, financing your care, and tips on how to live a healthy lifestyle with the disease. You can also sign up for their 8-week email series with tips and resources to empower you to learn more about your condition. The foundation also recently released a new research center on their website, Inside Lupus Research, so that you can keep up-to-date on all of the latest scientific reports, disease management and treatment news.

Thank you for stopping by Autoimmune Warrior. If this article was helpful for you, please like, share, and comment below!

 

When your doctor doesn’t believe you

Have you ever complained to your family physician about your symptoms, only to be totally dismissed?

Whether you’ve been diagnosed with an autoimmune disease or not, your ailments may be ignored or written off as ‘not a big deal’ by a health care professional.

This has often happened to me over the course of the last 7+ years of having an autoimmune condition. For example, before I was even diagnosed with Sjögren’s Syndrome, I was told that my symptoms, including joint pain, eye and mouth dryness, recurrent ulcers, yeast infections, and fatigue had a plausible, non-disease related cause, and weren’t really a ‘big deal’ anyway.

Even worse, other health care professionals told me my symptoms were nothing more than a figment of my imagination.

Worse yet, after many unproductive visits to doctors’ offices and labs, with little to no explanation for what could be wrong, I actually started to believe…could I be imagining this?

One family MD, for example, told me my joint pain was probably a result of ‘texting too much’. As a fresh-faced teenager, I probably didn’t look like someone who could be experiencing debilitating joint pain. But that shouldn’t matter. In fact, juvenile rheumatoid arthritis, affecting those 16 years and younger, affects over 50,000 people in the United States alone.

Another time, I needed a referral to see a rheumatologist. The nurse who checked me in asked, “How does someone your age need a rheumatologist? Did you wear high heels too much in high school?” Not only was her questioning intrusive, rude, and uncalled for, it invalidated my experience as a patient with a chronic health condition.

As a result, I became even more reticent to explain my health issues with the people who I should be speaking with the most…health care professionals! And sadly, this is too often the experience for others living with autoimmune or other chronic health conditions.

The Sjgoren’s Syndrome Foundation recently shared a tip on social media, stating, “Remember that just because a symptom can’t be seen easily, it is still important. If you feel that a physician dismisses your Sjögren’s symptoms, help educate them and/or find another physician”. Many commenters responded by lamenting their own experiences with not being taken seriously by their healthcare providers. One woman commented, “My dentist keeps telling me to stop making excuses for my bad teeth”, referring to the fact that Sjögren’s often has a devastating impact on patients’ teeth, despite maintaining a solid oral hygiene routine.

If I had to give one piece of advice for anyone with chronic health problems, diagnosed or not, I would say to never give up. If your physician doesn’t take you seriously, move on. This doesn’t mean that you don’t listen to your doctor’s medical advice; this means that if they tell you it’s ‘all in your head’, or ‘it can’t be that bad, can it?’, and you know they are wrong, then you stand your ground.

Remember, you are the best advocate for your own health! Check out these helpful tips published by WebMD about talking to your doctor.