Sjogren’s Syndrome

COVID-19 Increases Autoimmune Disease Risk

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A January 2023 study by German researchers suggests that your risk of developing an autoimmune disease is increased after catching COVID-19.

The study included over 38 million participants, approximately 640,000 of whom had contracted the COVID-19 virus, and the remainder being the control group. The study examined the likelihood that an individual would develop one of 30 autoimmune diseases after being infected with COVID-19.

The results of the study found that after being diagnosed with COVID, patients were 43% more likely to go on to develop an autoimmune disease. The most common autoimmune diseases that developed post-infection were: Rheumatoid arthritis, Sjogren’s syndrome, Graves’ disease, and Hashimoto’s thyroiditis. Study participants who had contracted COVID-19 were also more likely to develop, but to a lesser extent, one of: psoriasis, type 1 diabetes, ulcerative colitis, multiple sclerosis, celiac disease, alopecia, and vitiligo.

Study participants who already had an autoimmune disease faced a 23% increased risk of developing an additional autoimmune condition after COVID-19 infection, as compared to those who didn’t get the virus.

This German study adds to the body of research being conducted about COVID-19’s lasting impact on health outcomes. ‘Long COVID’, as it’s been called, can result in neurological problems, breathing difficulty, cardiovascular issues, digestive problems, and more. Now, autoimmune disease may be another outcome to add to the ever-growing list of long COVID health issues.

The results from this German research study on the connection between autoimmune disease and COVID-19 infection shouldn’t be a surprise. The risk of developing autoimmunity after a viral infection has been well documented in the past, such as the connection between the Epstein-Barr virus and autoimmune conditions like multiple sclerosis. It’s believed that through a process called molecular mimicry, viruses are able to deflect attacks from the host’s immune system, by confusing immune cells, and causing them to target healthy tissues instead.

COVID-19 patients have anecdotally shared their experiences battling autoimmune conditions after an initial coronavirus infection. Famed singer and musician Christopher Cross, for example, spoke out about his battle with Guillain-Barre syndrome after being infected. Children were also shown to be developing a condition called multisystem inflammatory syndrome (MICS) after getting COVID, which often proved to be worse than the virus itself.

For more information on COVID-19 and autoimmune disease, check out this blog post on COVID-19 vaccination and products that may help in your battle against COVID if you’ve already caught the virus.

Podcasts Every Chronic Illness Patient Should Listen to

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Back in 2019, I wrote a blog post about my favorite autoimmune disease YouTubers. These are YouTube channels that I personally follow as they document life with a chronic illness.

As a follow-up to that blog post, I wanted to share my favorite podcasts on the topic of managing life with a chronic illness. Although I still do watch YouTube videos fairly frequently, I also enjoy listening to podcasts since it’s so convenient to tune into a podcast while I’m working, doing chores, driving etc. without having to watch something visual.

So, without further ado, here’s my list of chronic illness podcasts that I enjoy listening to!

1. The Chronic Illness Therapist

The Chronic Illness Therapist is a podcast run by Destiny Winters, a licensed therapist in the Atlanta, Georgia area. Destiny has several chronic illnesses herself, including Postural Orthostatic Tachycardia Syndrome (POTS), Ehlers-Danlos Syndrome (EDS), and Mass Cell Activation Syndrome (MCAS). Since she’s both a therapist and a chronic illness patient herself, Destiny understands the impact that managing an illness can have on a patient’s mental health.

As part of her podcast, she delves into a number of challenges that chronic illness patients face, including:

  • Medical gaslighting and questioning one’s own sanity
  • Lack of support or understanding from family and friends
  • Coping with pain and other difficult symptoms
  • How to live a meaningful and full life while battling illness
  • Adverse childhood experiences and the mind-body connection
  • Grief and acceptance

I have found all of these topics to be relevant to my own life, and I think that many readers would find the same. Plus, I highly appreciate her perspective as a therapist and as a patient, because not many people have both the academic and real-life expertise of both of these roles!

2. Sjogren’s Strong

Sjogren’s Strong is a podcast co-hosted by Lupe, a patient living with the autoimmune condition Sjogren’s Syndrome, and her partner Brian. I first learned about this podcast via their blog, after I was first diagnosed with Sjogren’s myself and was looking for information from other patients. The podcast delves into many subjects specific to living with Sjogren’s Syndrome, such as:

  • Managing common symptoms, like dry eyes, dry mouth, joint pain, fatigue, and brain fog
  • Sjogren’s medications, treatments, and medical insurance
  • Living an active lifestyle with a chronic illness

Although the podcast is clearly specific to Sjogren’s, I think it’s valuable for many chronic illness patients, such as those with Rheumatoid Arthritis and Lupus.

3. The Chronic Ills

The Chronic Ills podcast is co-hosted by Alina and Angelica, two Australian women who talk about living with a chronic illness as young adults in their twenties. Some of the topics they discuss in their podcast episodes include:

  • Body image with chronic illness
  • Medication and alternative therapies
  • The cost of being ill
  • Living with a chronic illness and anxiety about the global pandemic
  • Navigating relationships and friendships with a chronic illness
  • The portrayal of disability in the media

Alina and Angelica have had very different experiences as a chronic illness patients; one of them experienced becoming ill gradually, while the other had a sudden onset of their symptoms. What I like is that they show that not all cases are alike, and that every patient’s story is unique.

Those are the top three chronic illness podcasts that I’m listening to at the moment! Do you have any Spotify podcasts that you would recommend? Let us know in the comments below.

Getting COVID-19 with an Autoimmune Disease: My Experience

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Hey all! It’s been a while since I last wrote a blog post. And the reason for that is…after 2.5 years of this pandemic and being fully vaccinated, I finally got COVID-19.

Getting COVID was one of my worst fears during this pandemic. As someone with an autoimmune condition, I wasn’t sure how my body would react to getting the virus. I had read stories, such as this young woman with an autoimmune condition, who had caught COVID and ended up having to get a lung transplant. It’s really scary since some people report that their symptoms are more of a bad flu, while others end up with crippling long COVID symptoms or worse, end up passing away.

It’s been a few weeks since I first tested positive, and I’m on the mend. My main symptoms were a fever, chills, sore throat, dry cough, loss of taste and smell, fatigue, joint pain, muscle soreness and weakness. As you can imagine, it wasn’t a fun recovery!

My only symptom now, a few weeks post-COVID diagnosis, is a lingering dry cough. I have asthma, and although it’s a very mild form of asthma, it definitely flared up when I got COVID.

I wanted to share some of the things that helped me recover from COVID-19 quickly when you have a compromised immune system. Of course, always talk with your doctor before beginning any kind of treatment plan or modifying your health regiment.

1. Anti-viral medication

The first thing that helped me recover from COVID more quickly was getting on anti-viral medication. The medication, called paxlovid, was developed by Pfizer and is composed of two separate medications: nirmatrelvir and ritonavir. The medication is taken orally as six pills swallowed daily – three in the morning, and three at night.

Paxlovid isn’t available to just anyone, however. You have to be at high risk for severe disease if you get COVID-19. As someone with an autoimmune condition and asthma, I definitely fit that category. I was able to get a last-minute telehealth appointment with a family doctor, and he prescribed me paxlovid, as well as some prescription cough medication.

A clinical trial showed that taking paxlovid resulted in an 89% reduction in the risk of hospitalization and death. So, if you get COVID and you’re immunocompromised in some way, I would definitely talk to your doctor to see if you can get a prescription for paxlovid or another anti-viral medication to help you recover faster.

2. Heating/Cooling Pad

Another item that really helped me recover from COVID was a lavender heating and cooling pad. I’ve talked about using a lavender heating pad in the past on this blog for general muscle aches and joint pains, but it was definitely helpful in recovering from the virus as well.

For example, when I was running a low-grade fever, I was able to put the pad in the freezer to turn it into a cooling pad, helping me cool down when I was running hot at night. When I had bad muscle aches and joint pains, I would heat up the pad in the microwave and within a minute, I was able to get some relief.

There are many inexpensive heating pads that you can find online – for example, I found this lavender heating pad from Amazon for only $12.99. You can obviously get an unscented version if you prefer, but I do enjoy the floral aroma.

3. Humidifier

As someone with Sjogren’s syndrome, having a humidifier is always a good bet, since it makes the air feel less dry and helps moisturize your immediate environment. That being said, it also helped me to feel more comfortable when sick with the virus, since COVID gave me a bad dry cough as well, not to mention I had a flare up in many of my Sjogren’s syndrome symptoms, like eye, mouth, and skin dryness.

The humidifier I use is from the brand Crane, but you can find various humidifiers online in different styles and sizes that will fit your space best.

4. Throat Spray

If you’re like me and you experience a bad sore throat and cough when you’re sick with COVID, then I’d recommend looking into an over-the-counter throat spray to help relieve some of the soreness and discomfort. You can get throat sprays with a numbing agent, like phenol or lidocaine, at most major pharmacies. I ended up picking up this cherry-flavored throat spray from CVS, and it definitely helped me get through some of my worse days.

If you’re looking for more of a natural throat spray, you can try an echinacea throat spray such as this one on Amazon for less than $12. Echinacea is a natural compound derived from perennial flowers, and has been used among Native American populations for its healing properties. That being said, echinacea is believed to work by boosting one’s immune system (like Vitamin C), so if you have an autoimmune condition, just be sure to get the go-ahead from your healthcare provider before taking any herb or medication that could increase immune activity.

Those are the items that helped me the most to recover more quickly from COVID-19. Are you someone with an autoimmune disease or other chronic illness who caught the virus? If so, what helped you to recover? Let us know in the comments below!