Raise Awareness About Sjögren’s Syndrome by Sharing Your Story
April is Sjögren’s Syndrome awareness month! To raise awareness about this autoimmune disease, the Sjögren’s Syndrome Foundation (SSF) will be posting a daily story about someone affected by the disease on their social media platforms with the hashtag #ThisisSjogren’s. To participate in the campaign, fill out and submit the questionnaire at the following link along with a photo: https://info.sjogrens.org/conquering-sjogrens.
Here’s my questionnaire:
Current age: 26
Age when diagnosed: 20
City/State: San Diego, California
How would you describe yourself in one word (teacher, graphic designer, stay at home parent): Marketing Coordinator
What are your top three most difficult symptoms to live with: Eye/mouth dryness, joint pain, fatigue
What is your most difficult symptom that people don’t understand: Brain fog – it’s an invisible symptom, and it’s hard to explain
What do you wish people knew about your Sjögren’s:
That the condition involves the whole body, and it’s more than just eye and mouth dryness (and even those can be destructive symptoms).
What’s your best Sjögren’s tip:
Find a positive outlet in which you can discuss your disease – whether that’s a support group, talking with a loved one or keeping a journal. I write about Sjögren’s on my blog, autoimmunewarrior.org, and use it to connect with others who have the disease.
