Working with a chronic illness

Working with a chronic health condition can be a challenge. Sometimes, you may not feel ‘up to’ working, but you still have to put in a full day on the job. There are times when you feel sick— but perhaps not sick enough to warrant taking a sick day. Even if you do take time off, there may be judgments from co-workers that don’t believe that what you’re going through is real, especially invisible illness symptoms, such as pain.

When looking back through my life, I can see various ways in which my chronic illness, Sjögren’s Syndrome, has impacted my work. For example, I experience significant joint pain after doing hours’ worth of typing. Also, the stale office air worsens my dry eye and mouth symptoms, causing me to use copious amounts of eye drops and saliva-stimulating medications. Also, debilitating fatigue affects my energy levels and impacts my ability to produce as much as I want to.

As a result, I have had to adjust my lifestyle in order to stay healthy and maintain my productivity while on the job. Here are a few tips that have helped me:

  • Getting a good night’s rest – Before being diagnosed with Sjögren’s, I could get 4-5 hours of sleep per night, and still be productive and alert throughout the day. But no more. I must get at least 7-8 hours’ worth of solid rest to help combat against disease-related fatigue.
  • Being mindful of my eating habits – With a chronic health condition, I need to be extra mindful of what I’m putting into my body. While others may be able to sustain themselves on caffeine and sweets- I know that doing likewise isn’t going to make my body feel any better; so I pack a healthy lunch, and choose the healthy option when I eat out.
  • Organizing my treatment plan – I think it’s extremely important to be organized when you have a chronic illness. For example, I record my doctor’s appointments on my calendar and stay on top of taking my medications and supplements, which it vital to treating my symptoms.
  • Staying active – Exercising, while also holding down a job and managing my chronic illness, can be a challenge. However, I know it’s important to stay active, because it makes my body stronger and more resilient, and I’m able to complete tasks using less energy as a result. So, I go to the gym and take walks around my neighborhood and in the business park on my lunch break at least a few times a week.

When you have to leave your job

I recently started following a YouTuber by the name of Samantha Wayne. In her YouTube channel, called Live, Hope, Lupus, she discusses having to leave her full-time job as a result of her autoimmune condition. You can check out the video here.

Having to leave a job due to health reasons can be devastating. In addition to the financial benefit of having a job, many individuals (especially Americans) rely on their job to pay at least partially for their costly health insurance premiums. I have found that there is also a psychological benefit to having a job; it gives me confidence, makes me feel like I am ‘valuable’ and helping others, and feel like I am a productive member of society. Although one shouldn’t rely solely on a job for their self-esteem, I do believe that it’s a contributing factor.

In Samantha’s case, she transitioned to several part-time business and work opportunities in order to earn a living, and have more time and flexibility to manage her lupus and Sjögren’s symptoms. Exploring other work alternatives, such as freelancing, part-time and contract work, or starting your own business, might be an ideal way to balance both your health and financial commitments.

Final Thoughts

If you are finding it challenging to keep up with managing both your chronic health condition, work and other life demands, I would encourage you to implement the tips above to see if it makes a positive difference. Don’t let your disease get in the way of accomplishing your dreams and goals!

How do you manage your chronic illness while working? Has your health impacted your ability to do your job? Do you have any additional health management tips? Comment below!

 

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